Monday, August 27, 2012

my annoying trip to the ER with a non-verbal child

For the last couple day Miles has not really been feeling well.  So of course to go with it is the lack of sleep, well because he has a runny/stuff nose... we all know how that makes it hard to sleep. 

He is also uncomfortable and being in the house makes him upset since he is uncomfortable.  We have needing to take him out in the car to put him to sleep for the night, and giving into the drive because we assume he will not need to go after his cold passes.

Then yesterday he started becoming 'impossible'.  I mean he had turned into a tiny monster... he did not want to be at home and he would start screaming and nothing made him happy... but to leave the house.  We went to the school playground, he went to the gas station with Grandma, then the gas station with me and then we drove from Loveland to Greeley and later we were driving from Loveland to Fort Collins and he fell asleep.

Miles was out cold at 9:00 pm.  I got Avery to bed at 10:00 and then got ready for bed myself.  12:00 am Miles was up and screaming again.

Ok to back track Miles sometimes has a problem constipation.  Even though he has not been wanting to eat much I gave him Pedia-lax since he had not be regular... but I did not think that was the problem. 

The other thing he was doing yesterday was not wanting to sit on the potty or in his booster seat at the table.  He was also pulling at his penis and crying so when he was up so early I decided it could be a UTI and took him to the ER.

Of course when we first got to the ER he had quit screaming so I had to tell them he had been screaming but is not now and that he is 'non-verbal' so he can't tell me what is wrong.

Non-verbal.... of course this sparks all types of questions. "Can he say anything?"  "Can he hear?"  "Is he Autistic?" (you mean is he a child with Autism?) By then he already wanted to leave the ER so he was screaming like he was at home. so then this sparks more Autism questions. "Is he like this a lot?"  "Does he act like this frequently?"  

I wanted say "No you fricken idiots!  Why the hell do you think I brought him here for?" 

Next I get asked by the doctor what I think is wrong.  So I tell him all that had been going on.  I tell the doc that I think my little guy has to pee but wont, that perhaps it hurts... maybe a UTI (?)  I also mention that he had been pulling at his penis a lot like it had been bothering him... and the response I got was "All little boys play with their penis"  um yeah duh but they usually don't cry about it!

So I get asked if he can pee in a cup. Ha ha ha, yeah right!  So unfortunately I tortured my poor son with a catheter because the urine test came back fine.  

Miles is also very strong and it took a lot of nurses to hold him down.  Things were not going well.  He did not want to take Motrin or Tylenol, they tried to do an ultra sound of his testicles, but he was not having any of that either.  The doctor checked his ears and everything else and Miles was fine.  The doctor kept checking his penis and said it looked ok too.  Then one final time he saw some red irritation that could be from swimming or from the pull-up diapers I have been putting him in.  

After 3 hours in the ER the doc brought up the possibility of twisted testicles but would have to sedate Miles to look at him.  I had enough at the point and so did Miles.  He hilariously kept trying to push and pull me out the door and bring me his shoes.  I just said I will go home and put ointment on him and see how that goes.

The ride home did not get Miles to sleep.  We were at home 4: something in the morning and until he finally peed on the floor he would not sleep once he peed on the floor he was out.. well until 7.

 So he is still cranky and wants to leave the house.   

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