Wednesday, July 10, 2013

Don't know my story? Feel free to ask not judge.

Other conversations have sparked this and yet it is something I think about often.

Now that I get out there into the world and now that my kids are in school I often get the question/ response "How come you have not gotten a diagnosis yet?"  I want to say "Because I haven't OK."

For the most part I am not in hurry as I have mentioned before.  As long as Miles gets a diagnosis before Kindergarten I am fine... and this is only because it determines what services he can get in school and perhaps outside of school.


So for those of you who don't know it or just want to read it anyway here it is:  Miles was an easy baby.  I was scared he would not be because Avery was and people kept telling me that if I had one easy baby there was no way Miles was going to be an easy baby... but he was.  He was always happy and easy going except when he was hungry and you can ask his Nana about how he would not take a bottle...    He laughed at his brother, he wanted to move quickly to keep up with him too.  Unlike Avery he actually crawled and like Avery was an early walker.  Because of Avery he heard and or watched the movie Cars everyday of his life for the first year but he was always excited when it came on.  He was always on the go, but so was Avery.  

He was always quite, unless he was upset, laughing or excited.  When he was not talking or really even babbling (he cooed a lot though) we were not concerned and neither was the pediatrician because like Avery, Miles was hitting all the other milestones early except for communication.  Avery started talking in sentences at age 2.

At age 2, Miles was not talking yet.  The pediatrician referred me to child-find for my county but still said he was not too concerned with anything.  This is where parents sometimes get mad a the pediatrician for dismissing things, I am not mad nor did I think he was blowing things off.  Here is the other things my childrens' pediatrician knew about my children:


I was in the office every couple months for checkups between the two kids.  The pediatrician was well aware of my family's situation and how Andrew was in an accident.  He knew that my family was under distress and trauma and he knew it was hard to tell how it translated to my children.  Miles was only 14 months at the time of the accident.  He just wanted to watch and see how things woudl progress.

Miles had a harder time adjusting to apartment living and his daddy being home than anyone else.  We were all happy but it was confusing to Miles.  He was just turning 2.  It has taken him 2 years (plus the year Andrew was gone)  to become his daddy's buddy again.  Since he has gained that back I have seen a burst of growth in Miles.

On to Foothills Gateway he had therapy through when he was 2.  At the end of his time with them they brought up 'flags of Austism' and then even though they agreed he did not have many of them anymore the refused to remove them from the report.  Some of it I thought was because Miles just did not like them and he just wanted to avoid them. They also said to me that because of the growth they saw he may grow out of more and testing was up to us.  They also told me that they might not want to diagnose him until he was at least 4 in that case.

So there it is.  We are now on a wait list for testing.

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